By Dennis Debbaudt
Debbaudt Legacy Productions, LLC
Advice for the autism community from law enforcement professionals at training sessions over the past twenty years in training facilities throughout the US, Canada and elsewhere is very consistent: accurate autism information, even when generic in nature, will inform their response. Information that is specific to the person becomes clearly advantageous for a responding officer.
In the training room setting, generic information is extremely useful for the law enforcement professional. For example, understanding our population, people with autism spectrum disorder (ASD), from the viewpoint of independence level becomes essential background about autism related field interactions.
The term “less independent” may be used to describe children and adults who will have difficulty in areas involving basic life skills such as safely crossing a street, negotiating a financial transaction, and making sense of social interactions. Often, these individuals are also nonverbal and may use alternative forms of communication such as sign language, Picture Exchange Communications Systems (PECS), or computers that can speak for them. If verbal, their communications may be understood only by a family member, caregiver, or teacher. More often than not, they will, or should, have a caregiver accompanying them and will be dependent on parents, siblings, or others to provide the basic necessities of life.
More independent young people and adults may be able to fully express needs, use public transportation, learn to drive, attend college or university, be employed with surprisingly powerful and professional careers, marry, and have children. However, they are challenged by the same issues as their less independent peers, albeit to a lesser but still significant degree (Debbaudt, 2013).
This report will focus on safety strategies that families, caregivers and everyone involved can develop and implement for the less independent individual.
Law enforcement professionals advise that approximately eighty percent of patrol responses do not involve criminal activity. Research indicates that persons with developmental disabilities, ASD being the most prevalent, are approximately seven times more likely to interact with law enforcement than others (Curry, Posluszny & Darska, 1993). Additionally, the estimated rate of occurrence of ASD has grown dramatically: from two to five of every ten thousand Americans in the 1980s to one in sixty-eight (CDC, 2014). Considering this, law enforcement is now receiving training to prepare for contact with people with ASD (Debbaudt & Rothman, 2001).
Field contacts regarding a suspicious person, aggression and missing children and adults are three predictable autism related interactions that are best described as high risk interactions. The first two are high risk for all involved, fraught with communication and proximity issues. The third, tragically, is too often a cause of death for the vulnerable child, young person or adult.
Since each individual with autism is unique and may act or react differently (Debbaudt & Legacy, 2005), the responsibility of providing information for persons with autism, family members and care providers loom large. If person-specific information is clearly advantageous for a responding officer, how can individuals with ASD, families and caregivers provide this actionable intelligence? In a word: disclosure.
Disclosure of person-specific information is a key element – perhaps the key element – of a personal safety plan. Disclosure in a variety of settings can be simple or more complex depending on individual needs and circumstances. While disclosure and what to disclose will always be voluntary, it can provide a higher level of informed response during interactions with law enforcement professionals.
During training, officer and citizen safety is a primary concern. When safe to do so, officer investments in time, patience, and clear communications can occur. Training does inform officers about the sights and sounds associated with persons with ASD. Yet, asking trained police officers to accurately conduct a field diagnosis of person’s autism may go beyond reasonable expectations. Disclosure will help by taking guesswork off the table of risk.
Police training topics include how a physical outburst might well be related to the ASD person’s sensory dysfunction, inability to deal with interruptions in the daily routine, or emotional lability (being susceptible to change, error, or instability). This often presents itself in individuals with ASD – their emotions can change quickly and they can become upset, scared, or anxious very quickly. They may also be extremely anxious one minute, and then calm the next, or vice versa (Taylor, Mesibov & Debbaudt, 2009).
Suspicious person reports can include parent or caregiver actions that may be misinterpreted or appear as assault. For example, a father picking up and carrying away his crying child from a store or park may appear to observers as a possible child abduction. Another example would be a caregiver’s actions in trying to calm an adult. Both are precisely the sorts of situations that may result in a 911 call reporting suspicious persons (Debbaudt, 2001). When police do arrive, lack of disclosure and proximity could become a volatile combination.
Aggressive outbursts frequently occur at home, at school or in any community setting. The proximity to others in the rooms of most homes and schools adds to the danger of the situation. These aggressive behaviors may be a form of self-stimulation or a sensory reaction to objects and influences in the environment and not truly a sign of calculated disobedience. The person with autism wants the circumstances to change but does not know how to implement that change. When one adds in the issue of emotional lability, this presents an obvious dilemma for responding officers (Debbaudt, 2013 and Debbaudt & Rothman, 2001).
Independent adults may wander away from homes and caregivers, but the majority of missing person calls will involve children; the reporters will be family members, educators and caregivers. They are prone to escaping into the community from homes and schools or while shopping or traveling. The escape often occurs at night when caregivers are asleep. The escape can also occur when parents and caregivers become injured or incapacitated, ill, or otherwise occupied, perhaps when using a restroom, taking a call, or caring for a sibling. Keep in mind that the individual may quickly cut across great distances.
Drowning is a leading cause of death for people with autism (Shavelle, Strauss & Pickett, 2001). They may be unusually attracted to water sources and frequently found in or near rivers, lakes, ponds, pools and fountains. The child or adult will all too often seek out and enter into water sources, for example, permanent or seasonal swimming pools, ponds, rivers, streams and lakes. Individuals may also be dangerously attracted to vehicles and wander into traffic or attempt to enter nearby homes or dwellings, wander onto train tracks and elevated places such as rooftops, trees and on or under bridges. They may fatally find false refuge in underbrush, alleys and dumps where they may seek rest and comfort under a mattress, between sofa cushions or inside discarded furniture and appliances.
For each of these high risk contacts, the first step for families, school officials or other caregivers will be to call 911 immediately upon discovery of a missing child or adult and use the word autism to describe the individual. Resist the temptation to conduct a search before calling 911.
Simple and highly effective disclosure options include multicolored autism puzzle ribbon magnets, awareness decals, license plate holders and autism awareness license plates for vehicles, homes and locations where the person may be. Identification (ID), name or phone number, may include an autism tag or bracelet, an autism information card, information printed or on quick response (QR) codes (scanned by smart phones) on tags put in shoes, sewn into garments, imprinted on undergarments, or on a non-permanent ID tattoo. The operable word gleaned from these awareness icons and ID is autism. Upon observation or when they hear the word, trained police will recognize these disclosures and put their autism knowledge into action.
Families and caregivers should develop a person-specific autism emergency contact form that includes, but are not limited to the following information: name, current photograph, complete physical description, home and cell phone numbers of all emergency contact persons, sensory, medical, or dietary issues and requirements, inclination for wandering, attractions and locations where person may be found, atypical behaviors or characteristics that may attract attention, favorite topics to pursue and calm the person; topics to avoid that cause fear, anger, or outbursts, recommended approach and de-escalation techniques, method of communication, ID jewelry, tags on clothes, printed handout card, guide to nearby properties with water sources and dangerous locations highlighted, communications technology being used to track the movements of person radio frequency (RF) or global positioning system (GPS) (Debbaudt, 2001).
This form should be legible, printed out and copied for distribution to all caregivers: family, educational, child or adult care, transportation, therapeutic and recreational. Keep copies in vehicle glove compartments, under sun visors, in care providers and child or adults purses, wallets and backpacks.
Emergency call centers (911) are now offering voluntary registration programs in regions of the U.S. and Canada. For families that participate, person-specific information can be uploaded and accessed quickly by way of mobile computer or dispatch. Check with your local call center for availability.
Review, revise and practice your disclosure options at least once a month. Remember the advice from our law enforcement advisors: accurate information will inform their response. Let’s get it to them! Stay safe!
Debbaudt, D. (2013) Autism: Managing Police Field Contacts. International Association of Chiefs of Police.
Curry, K., Posluszny, M. and Draska, S. (1993) Training Criminal Justice Personnel to Recognize Offenders with Disabilities. Washington, DC: Office of Special Ed. and Rehabilitative Services News in Print.
Center for Disease Control and Prevention/National Center on Birth Defects and Developmental Disabilities Website Accessed March, 2014.
Debbaudt, D. and Rothman, D. (2001) Contact with Individuals with Autism: Effective Resolutions. FBI Law Enforcement Bulletin, 7, 4, 20-24.
Debbaudt, D. and Legacy, D. (2005) Autism on Scene Response Card. Debbaudt Legacy Productions, LLC. Port Saint Lucie, Florida.
Debbaudt, D. (2001) Autism, Advocates and Law Enforcement Professionals: Recognizing and Reducing Risk Situations for People with Autism Spectrum Disorders. Jessica Kingsley Publishers. London-Philadelphia.
Taylor, K, Mesibov, G. and Debbaudt, D. (2009) Autism in the Criminal Justice System. North Carolina Bar Journal.
Shavelle, R.M, Strauss, D.J., and Pickett, Jane (2001) Causes of Death in Autism. Journal of Autism and Developmental Disorders. Vol.31, No. 6