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Challenges for Autistic Adults in Navigating the Labyrinth of Healthcare
As I was fortunate enough to have had employment with good healthcare benefits, I did not have to face many of the challenges in navigating the healthcare system that autistics regularly encounter. Nevertheless, because of my involvement with the autism community over the past quarter century, not...
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Self-Advocacy in Healthcare: Empowering Autistic Adults to Take Control of Their Well-Being
Navigating the American healthcare system is a challenging task for neurotypical (NT) and neurodiverse (ND) communities alike; however, there are substantially greater barriers to effective care and risk factors identified within the ND community. Research has shown that there are higher mortality...
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Establishing Sensory Inclusive Theater Experiences
Many sensory inclusive theaters and performing arts venues have incorporated sensory-friendly (SF) or relaxed performances (RP) to increase access to the arts for all patrons. Often, these events are geared towards children or younger audiences and for individuals who experience hypersensitivity....
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All Are Welcome: Creating an Inclusive Festival
Almost 11 years ago, I founded an organization, Autism Personal Coach, that provides coaching to autistic adults and teens to improve the quality of our lives. Within the first year of our existence, I realized that the lack of community was a glaring and alarming need for many of our clients. That...
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Anderson Family Partners: Extended Family, Redefined
For Colleen Contreni, Family Liaison at Anderson Center for Autism, the concept of ‘extended family’ has long inspired her work. “I have always been a very family-oriented person, and this role at Anderson is a reminder that by cultivating a spirit of kinship among parents, caregivers, and...
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From Parent to Advocate: My Mission to Help Other Families
When my son Oliver was about nine months old, I noticed some milestone delays. I also realized that he had a tic. He would get very excited - wailing - when he saw something that caught his attention. It was also around that time that I knew I had to quickly become his advocate. Naturally, I...
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7 Things Students with Disabilities Should Do When Starting College
Students with disabilities may have tremendous potential as well as exceptional needs. But to fulfill that potential in college, they need to be sufficiently prepared, because the transition from high school involves a huge increase in independence. Here are seven key strategies and mindsets that...
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Autism and Education: One Size Does Not Fit All
Having attended many talks, workshops, and education-related autism community events, I often hear the expression “one size does not fit all” used by teachers and other professionals who work with students on the spectrum. It is always gratifying for me to hear people having the most experience...
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Forbes Lists AHRC New York City as One of America’s Best Employers
AHRC New York City was recently named one of Forbes America's Best Midsize Employers for a second consecutive year. Founded in 1949, AHRC NYC has grown into the state’s largest nonprofit organization supporting children and adults with intellectual and developmental disabilities. AHRC NYC was...
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How Physical Distancing Brought Us Even Closer Together
Five years have passed since I last wrote about our social recreation group CASY Sparks, previously known as Project CASY (Community Autism Socials at Yale) in the Spring 2016 Issue of Autism Spectrum News. CASY began to flourish in 2016 with the establishment of the Daniel Jordan Fiddle...
