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Using Acceptance and Commitment Therapy for Parents with Autistic Children
Being a parent or a caregiver of a child with autism can present great challenges, often affecting the parent or caregiver’s psychological and physical well-being, especially their stress and depressive symptoms (Lunskey, 2017). Parents report feelings of despair, sadness, anger, denial, and...
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How Digital Health Ecosystems Are Shaping the Future of I/DD Support
The disability service sector finds itself at a crossroads. The current federal administration is working with Congress to reduce the size of government and overall spending levels. It is likely that this will affect Medicaid Long Term Service and Supports in many states, creating concern within...
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Natural Supports: A Lifeline for Families Like Mine
In 2024, my world changed forever. I lost my father to prostate cancer—a man whose strength and love defined the very foundation of my family. He fought with everything he had to stay alive long enough to care for my mom, who was battling dementia. Even as his own health declined, he dedicated...
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When the Caregiver Role Reverses: Navigating Caregiving as an Autistic Person
Throughout my career, I have heard many times that people with Autism require structure and routine. I have had countless conversations about caring or providing services for people with Autism. What happens when life takes unexpected turns? What happens when someone becomes dependent on them? How...
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Project ImPACT: Empowering Parents with Evidence-Based Strategies for Early Autism Intervention
The prevalence of autism has increased dramatically over the last 20 years, with current estimates at 1 in 36 children having a diagnosis or special education classification of autism (CDC, 2023; ADDM surveillance network, 2023). The American Academy of Pediatrics (AAP) recommends that all children...
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Parent-Led Strategies to Support Communication in Children with Autism Spectrum Disorder
When Mukri Yilma noticed her son Kibur’s use of words and gestures starting to fade at 22 months, she knew something was wrong. Suddenly, he was not waving “hi” or pointing at airplanes anymore, and he stopped using words that had been part of his vocabulary. Concerned, Mukri took Kibur to...
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The Power of Person-Centered Planning in Supporting Autistic Adults
Everyone wants to be heard and supported in ways that truly resonate with them. For adults with autism, this means having a voice in how their lives are shaped, and person-centered planning is the key to making that happen. It’s a process that ensures individuals are at the heart of their own...
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What Families With Autism Should Consider When Evaluating School Programs
One of the greatest challenges parents of children with disabilities face is finding the most appropriate educational program. When searching for a school for a child with autism spectrum disorder (ASD), the task can be complex. Understanding instructional and social variables can help parents make...
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Empowering Eye Exams: Strategies for Supporting Autistic Patients
Eye exam. Two words that can cause a lot of anxiety in families of autistic patients. Questions may arise about how your child will tolerate the exam and what to do if they need glasses. If your child has communication limitations or sensory sensitivities, you might wonder if they’ll be able to...
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Facilitating Health Care Visits: How Can We Prepare for a Therapeutic Visit?
Health care visits can be challenging for individuals with autism and the delivering providers. It is critical that we prepare both the individual and the provider to increase the integrity of the visit and ensure a successful outcome. When I took on my role as Senior Director of Healthcare...
