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Late-Diagnosed Autism and Camouflaging in People Assigned Female at Birth
It is becoming increasingly understood that there are marked differences in autism between genders. This has led to people assigned female at birth (AFAB) to being diagnosed in adolescence or adulthood at a higher rate compared to people assigned male at birth (AMAB) (Wood-Downie et al., 2020). I...
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Next Steps After an Autism Diagnosis: Acceptance, Advocacy, and Treatment Options
The road to diagnosis can be long and uncertain. For some, the news of diagnosis brings validation and hope. For others, it can lead to even more uncertainty. In either situation, it is important to seek support and guidance to navigate a path forward. It can be difficult to muddle through all of...
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Is It Genetic? My 40-Year Journey of Misdiagnoses for My Son
Forty years ago, my son Matthew was born. At the time of his birth, he had no apparent health issues. We began noticing that he wasn’t developing like a neuro-typical child when he wasn’t hitting milestones like rolling over. Since then, we have gone through countless tests and been given...
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A Call to Action: The Need for Advocacy in Healthcare Access in Autism
Although specific estimates vary substantially, autistic children and adults have a higher prevalence of comorbid medical conditions than those reported in non-autistic individuals. Among the most commonly reported comorbid medical conditions are neurological disorders, including epilepsy,...
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Understanding, Diagnosing, and Treating Catatonia in Individuals with Autism Spectrum Disorders
Catatonia is a distinct cluster of mood, motor, vocal and affective disorders once thought to be solely a specifier for various psychotic and mood disorders. It is now recognized in the Diagnostic and Statistical Manual of Mental Disorders (5th edition; DSM-5; American Psychiatric Association,...
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Ehlers-Danlos Syndrome and Its Comorbidities as a Co-Occurring Health Issue in Autistic People
Ehlers-Danlos Syndrome (EDS) occurs in as many as 8% of autistic individuals with even a higher percentage that may have hypermobility spectrum disorders (HSD) (Cederlof et al., 2016, Kindgren et al., 2021). This estimate is low since EDS is more commonly diagnosed in females (Castori, 2012), who...
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Providing Primary Behavior Health Care Services to Autistic Clients: Is This an Exception or the New Rule for ABA Organizations?
It is well known, but not fully appreciated, that an ASD diagnosis triggers a tsunami of emotions within the family of the autistic individual. Many established ABA provider groups have realized that the needs of parents and siblings of ASD individuals should be tended to via an interdisciplinary...
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Diagnosing Depression in Autistic Individuals
This is the first of two articles about depression in people with autism. Part 2 is The Art and Science of Treating Depression in Autism. This article discusses topics that may be upsetting to some people. The National Suicide Prevention Lifeline provides free, confidential support 24/7 at 1...
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Beyond Baby Siblings: Why “Next Gen Sibs” Is Critical to Advancing Autism Research
In the late 1990s, evidence-based research made it clear that autism was heritable and younger siblings of kids with ASD were more likely to become diagnosed themselves. This was a tremendous breakthrough but led to further questions about how to better understand autism recurrence and features...
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Early Screening Tool Leads to Earlier Diagnosis and Treatment for Autism Spectrum Disorder
Since it debuted in 2011, the Get SET Early program, which provides pediatricians and parents with a relatively simple process to screen for indicators of autism spectrum disorder (ASD) in children as young as age 1, has steadily grown in use and validation. Early screening and identification of...