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How a Sibling Connection Inspired Advocacy and a Career
When I was nine years old, I became an advocate. We were out in public and a woman chastised my mom for being unable to control my younger brother, Joey. My blood started to boil and I was outraged by this woman’s lack of empathy. However, my mom handled the situation with poise and grace,...
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Programming for Multiple Siblings with ASD: Tips to Promote Family Success
Current data suggest that if a family has one child with Autism Spectrum Disorder (ASD), the chance their second child will also have that diagnosis is 2-18% (Autism Speaks, 2020). If the family has two or more children with ASD, the risk their next child will also have ASD increases to 30% (The...
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Talking to Siblings About ASD
Siblings of children with Autism Spectrum Disorder (ASD) have unique needs and may have a range of feelings, both positive and negative, about their experience with their brother or sister with ASD. They may be reluctant to share these feelings with parents due to feelings of guilt (Opperman &...
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Different is My Identifier
I was eight years old the first time I remember being aware of my difference. It didn’t have a name yet, that was still decades away, but nonetheless, suddenly at the ripe old age of eight, I was cognizant of that I was indeed different. For the seven years of life prior to that, I happily lived...
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Girls and Autism: Overcoming the Gender Gap to Ensure Best Outcomes
The Centers for Disease Control (CDC) estimates that 1 in 59 children has autism spectrum disorder (ASD), with boys being four times more likely to be diagnosed than girls (Mandy et al., 2012). Recently, through a meta-analysis of epidemiological studies, it was concluded that the true ratio may be...
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Considerations in Diagnostic Assessment of Females for Autism Spectrum Disorder
The literature suggests that autism spectrum disorder (ASD) may go undiagnosed in females who do not have intellectual and/or language impairment (e.g., Mandy et al, 2012). Research on differences in ASD symptom presentation in females versus males is not yet well-developed and findings across...
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A Shift Towards Better Understanding and Improving the Lives of Girls and Women With ASD
It has been widely established that females are less frequently diagnosed with autism spectrum disorder (ASD) than males. On average, prevalence of ASD is four times higher in males than in females (Baio et al., 2018). This ratio appears to be an inaccurate representation of prevalence by...
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Presentation of Autism Spectrum Disorder in Females: Diagnostic Complexities and Implications for Clinicians
Autism Spectrum Disorder (ASD) is a neurodevelopmental disorder characterized by pervasive deficits in social communication and patterns of restricted, repetitive, stereotyped behaviors and interests (American Psychiatric Association, 2013). Beyond the main diagnostic criteria, however, there is...
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Navigating Neurodiverse Relationships: Disclosure and Self-Advocacy
If you are an adult who has had a longstanding diagnosis of ASD or a newly diagnosed individual, then you probably grapple with these ongoing decisions: If and when to disclose your diagnosis to others The pros versus the cons of disclosure How to go about sharing this information with...
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The Camouflage of Autistic Women
Women are diagnosed with autism 2-3 times less often than men. However, studies indicate that the number of unreported cases of autistic women is much higher than previously thought. Read here why women are so rarely diagnosed and why their daily work can be an immense psychological...
